Although not a subject I talk about as much as I could or perhaps even should, my health informs everything I do — or don’t — & all that I am. Of course, everyone’s health impacts them. An extreme physical malady has its obvious effects but is part of a spectrum that encompasses far more than can actually be seen. Good health, in turn, affects its lucky recipients for they have energies & abilities they can’t help but utilize. There are those who don’t take advantage of their potential healthfulness which is admittedly hard to see but even more common is the utter lack of recognition. When one’s health is good, it’s far too easy to take for granted. No-one’s to blame though for there’s little reason to ponder something that’s working properly.

The reason I’m so philosophical about mine is that it’s neither very visible or well-defined. While I readily own the struggles with my health, the real struggle is not being owned by it. “By what exactly?” you may fairly ask. Ahh, but that would be too easy. A name would require a diagnosis process which would require medical care which would require insurance which would ultimately require a far different life than we’ve chosen. My refusal to be defined has proven as far-reaching as most decisions are. The resulting poverty wasn’t by choice, as we’re repeatedly accused, but the choices that might’ve kept us from it didn’t lead to lives we were willing to live. An awareness of the risk accompanied every decision but you’re never knowingly opting to struggle yet more.
My life is a study in which came first; the chicken or the egg &, the thing is, the egg IS the chicken. Does that create a vicious cycle? Hell yes! My health, or lack thereof, limits my options & my remaining options limit my health. It’s at this impasse in such discourse that many a well-intentioned ‘friend’ has pointed out RhodesTer should have picked up the slack. If only I were as self-sufficient as I oft try to be & didn’t need a care-giver; I could also more easily work. Whatever anyone else’s take is & despite my own reticence, I’m a full-time job. Far harder than dealing with my own limitations has been enduring the slings & arrows directed at my care-giving hunny from previously trusted sources. Ever practitioners of considering the source, we’re running out of people to trust.
As living proof that there’s more to every story than meets the eye, I’ve always known there’s more going on than ever immediately evident. I did not always realize what an extension of that reality I personally was. Only now, four decades in, am I beginning to recognize the extent to which we carry in us an imprint of all we may yet become. Just as any scientific theory is questioned because of what has yet to be discovered, even Asthma — much less autoimmune — wasn’t yet understood when I was growing up. What was then ascribed to “growing pains” & stress has proven to be, in my case anyway, chronic pain & migraines. Possibly the Roseola as a child & particularly what was presumed to be Mono during my attempt at college are part of a greater, ongoing issue.
Mubyou-Sokusai
“mu”=none “byou”=illness, disease
“soku”=breath, health “sai”=disaster, bad luck“Mubyou” means what the kanji mean, to have no illness, & “Sokusai” means to be in exceptionally good health. Bringing these two words together, the idiom means not only to have no illness but to be in a healthy condition.
I’m not claiming to be blameless in the degeneration of my health. Opting to self-medicate throughout junior high & high school rather than consider that the pain prompting it might be indicative of an underlying problem most certainly didn’t help. That independent streak of mine precluded me from being willing to worry anyone even as I slowly but surely concluded such discomfort was not normal. I sobered up, rediscovering all my ills & aches, just in time to lose medical insurance upon turning 18. From the three jobs simultaneously held shortly thereafter to the three years spent at my last job, insurance has been either elusive or impractical. Those of you who can afford neither premiums nor deductibles also know spousal coverage, if offered, is prohibitively costly.
Life is a series of measured risks & we ideally risk only that which we’re willing to lose. The question of what’s being risked at each turn is precisely why so many follow expected paths & seldom seek change. On the one hand, my hunny & I are prime examples of how much can too easily be lost. Yet, we live without regret & have never lost ourselves. Truthfully, every day is a struggle to survive, on all fronts, but hope for a better future renews each time we do. Starting over as many times as we have, we’re seeking sustainable choices this time. Past paths may have provided for immediate needs but what we truly need is a slow, steady build toward real change. We can’t be discouraged by setbacks & must be careful not to compromise what we’ve already accomplished.

My health is a continual journey with small victories along the way & stepping stones made of every discovery. Amidst its ebb & flow, our lives have had to be sorted, for better or worse. Even now, as my body produces ever diminishing returns after so many years, those who’ve followed the fight remain surprised somehow. “Wasn’t the desert supposed to help!?” The reality check is how much worse I’d be if not here. All the assumptions are of being either well or simply not. No different than everything else in life, the shades of gray in between are innumerable. Strides that had finally been made toward the well side have unfortunately been undone but knowing there are some effective weapons is more than half the battle. Once I can use them in combination, I’ll really be fighting!
(|_|*cheers*|_|)
“The power of love to change bodies is legendary, built into folklore, common sense, and everyday experience. Love moves the flesh, it pushes matter around…. Throughout history, “tender loving care” has uniformly been recognized as a valuable element in healing.”
~ Larry Dossey ~

















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I think you misunderstood.. I didn’t bring you to the desert for its healing powers, but rather because it’s a good place to bury a corpse.
I kid I kid!! I kid because I LOVE!!!
You exude such wisdom, Dorian, and you write beautifully. Keep at it — doing what you love with this blog — and good things will surely come.
I think that the formula for attaining any wanted condition or situation is to (1) accept where you are and find things to appreciate about it — which you clearly do — and (2) keep envisioning where you want to be and take delight in the savoring of those mental pictures.
And then (3) know that with every thought, you’re either moving a tiny bit towards what you want or away from it. NOW, let go of frustrations and hurts as best you can (I know you do this, too) and focus on what feels good when you think about it.
As I learned from a doctor who was on “Oprah” decades ago, “Every thought you think showers your body with chemicals.” I’ve played with that idea for years now, and I’ve never observed anything in my life or anyone else’s to contradict it.
I so admire the way you and Dave accept your own uniqueness and don’t try to change yourselves from being “square pegs” so you can fit into society’s “round holes.” As I’ve learned to give up on that uphill battle myself, I’m finding all sorts of strengths and talents I didn’t know I had when I was trying too hard to be “conventional,” whatever that means.
You have much to offer via your writing, and as you continue to share, I think you will thrive.
Oh, I knew you guys should live in Ontario—even though we’re up to our asses in snow, when those asses catch cold, health care is free. Actually health care is free all the time, but it only counts if you need it.
In spite of sounding both Canadian and blithe about your post, I am worried for you, and wish that there was something I could do to make it easier. One thing, I know, your hunny always just seems so loving. Let the naysayers, naysay I say.
Dorian, Being one of those who takes her health for granted and only realizes how good one can feel when something goes wrong, I can’t begin to imagine what living with a chronic illness is like. Having a daughter who struggles as you do with an illness that effects every thing she does and ultimately affects her health in negative ways due to the fact that anything she does negatively impacts the condition which leads to more health issues and being the loved one who watches her daily struggle with frustration and well meaning intentions helps me to understand in a very small sense.
I enjoy reading your posts and the intelligence, wit, and insight that abounds in them.
If there is ever ANYTHING I can do for you and Dave please don’t hesitate to ask. I will do what I can with little thought to consequence to myself.
Enjoy the day and I pray the sun shines on you always.
I’ve been remiss, I know, but I do think about you a lot.
Health comes, and health goes; it’s the love inside and outside that really matters.
Jerry would be proud of you. He says you have great beliefs for a human. He too takes on every day with a passion for life, while carrying his own heavy health burden. Just remember his mantra: It’s better to hop on three legs than to limp on four. And keep on keepin’ on …
As one who is 1.5+ decades ahead, I can attest the physical doesn’t get any easier. And while I never subscribed to the idea that those who live longest win (well, maybe some win free wheelchairs), there’s certainly a quality of life compromise if one’s in pain or discomfort while living. So I was wondering if there were any Free Clinics in SoCal for those who qualify? I suppose I should assume this has already been scoped out but just wanted to put it out there on chance. Meanwhile, all my best.
Thank you so much for sharing your insight into your health problems. I don’t have much cause for complaining, yet I do the lion’s share of it, it seems.
*hugs* God grant that I get to meet you someday. You’re an amazing person to know. ^_^
I’m relieved opening up more about my health hasn’t proven TMI!? Rest assured, complaints are all relative, none of us are above pointing out that which we’re simply not used to so, tho’ I may be silent about a lot, I certainly don’t stay silent!
Consider yourself hugged right back.. I would love to meet you &, God-willing, that day WILL come as it’s already been such a blessing knowing you too.
|_|) “The I in illness is isolation, and the crucial letters in wellness are we.” ~ Mimi Guarneri, “The Heart Speaks”
Dealing with health issues gives one a completely-different perspective on the world. I’m fortunate to live in Canada where I can get treatment (such as there is) for the auto-immune disorder that has plagued me these past 30 years. I was also lucky in being able to medically retire & so I have a pension.
The world looks vastly different when one is in pain or fatigued. Good for you for speaking out and for sharing — I’ll think of you as I continue to sip on my café.
Each tho’t wends its way into my ever waning energy & adds to my resources.. I also reap untold energy from each shared café so am particularly grateful for coffee tho’ts!
Living in the US, at its poverty line to boot, does make my health challenges more challenging but I wouldn’t trade my CA weather for anything.
Perspective is central to what I’m — thus my blog’s — about as mine’s always been different tho’ I didn’t always know why.
Your encouragement means the world to me since you know so well wherefore I speak. I raise my mug to your ‘luck’ &, even more so, your appreciation of it.
|_|) “Good friends are good for your health.” ~ Irwin Sarason, PhD